{"store":{"baseInfo":{"podcastTitle":"Jett Foundation’s Podcast","slug":"jettfoundation","podcastDescription":"Jett Foundation’s podcast will bring you recordings of our educational Awareness Days and more. These educational events serve people and families in the Duchenne muscular dystrophy community along with Jett Foundation’s many other programs and resources. We encourage you to give these podcasts a listen in order to learn more about Duchenne, how to better prepare for unexpected moments, help assist someone that relies on your support, and more.","podcastLogo":"https://pbcdn1.podbean.com/imglogo/image-logo/15276474/Jett_Logo_-_Red_ezb8nc.png","podcastShareLogo":null,"podcastUrl":"https://jettfoundation.podbean.com","podcastCanSearched":false,"feedUrl":"https://feed.podbean.com/jettfoundation/feed.xml","theme":"elegant","podcastDeepLink":"https://www.podbean.com/pu/pbblog-r5h7f-e919ba","removePodbeanBranding":"no","brandingLogo":null,"timeZone":{"timeZoneId":15,"gmtAdjustment":"GMT-05:00","useDaylightTime":1,"value":-5,"text":"(GMT-05:00) Eastern Time (US & Canada)","daylightStartTime":"Second Sunday Of March +2 Hours","daylightEndTime":"First Sunday Of November +2 Hours","timezone":"America/New_York"},"podcastDownloads":null,"totalEpisodes":3,"showComments":true,"iOSAppDownloadLink":null,"customizeCssUrl":null,"androidAppDownloadLink":null,"showPostShare":true,"showLike":true,"author":"Jett Foundation","engagementStatsBaseUrl":null,"shareEmbedLink":"https://admin5.podbean.com/embed.html?id=pbblog-r5h7f-e919ba-playlist","language":"en","sensitivitySessionExpireTime":3600,"podcastApps":[{"name":"Podbean App","link":"https://r4j68.app.goo.gl/?link=https%3A%2F%2Fjettfoundation.podbean.com%3Faction%3DopenPodcast%26podcastId%3Dpbblog15276474%26podcastIdTag%3Dr5h7f&dfl=https%3A%2F%2Fjettfoundation.podbean.com&utm_campaign=pb_web&utm_source=podbean_web&utm_medium=dlink&imv=670&amv=530&isi=973361050&ibi=com.podbean.app.podcast&ipbi=com.podbean.app.podcast&apn=com.podbean.app.podcast","image":"https://pbcdn1.podbean.com/fs1/site/images/admin5/podbean-app.png","title":null}],"components":{"base":[{"id":"MainStyle","val":"light"},{"id":"Font","val":"Avenir"},{"id":"SecondaryFont","val":"Avenir"},{"id":"PlayerColor","val":"#8fc31f"},{"id":"PlayerStyle","val":"player1"},{"id":"PlayerWave","val":"show"},{"id":"Favicon","val":null},{"id":"CookiesNotice","val":"hide"},{"id":"CookiesNoticeContent","val":"

Cookies Notice

This website uses cookies to improve your experience while you navigate through the website. By using our website you agree to our use of cookies.

"}],"home-header":[{"id":"HomeHeaderTextColor","val":"#000000"},{"id":"HomeHeaderBackgroundColor","val":"#ffffff"}],"page-header":[{"id":"PageHeaderTextColor","val":"#ffffff"},{"id":"PageHeaderBackgroundColor","val":"#868686"}],"episode-list":[{"id":"EpisodeListType","val":"grid"},{"id":"EpisodesPerPage","val":10},{"id":"EpisodeStats","val":"show"}],"navigation":[{"id":"NavigationFontColor","val":"#000000"},{"id":"NavigationBackgroundColor","val":"#e9e9e9"},{"id":"NavigationSearch","val":"show"},{"id":"NavigationLinks","val":[{"id":"Home","type":"Link","value":"/","text":"Home","subitems":[]},{"id":"Subscribe","type":"Link","value":"https://www.podbean.com/site/podcatcher/index/blog/VpPrX1coGuL2","text":"Subscribe","subitems":[]},{"id":"Profile","type":"Link","value":"https://www.podbean.com/user-vLM3GgUKjf6G","text":"Profile","subitems":[]}]}],"footer":[{"id":"FooterType","val":"Footer2"},{"id":"FooterFontColor","val":"#ffffff"},{"id":"FooterBackgroundColor","val":"#000000"},{"id":"FooterCopyright","val":"Copyright 2022 All rights reserved."},{"id":"SocialMediaLinks","val":{"facebook_username":"","twitter_username":"","instagram_username":"","youtube_username":"","linkedin_username":""}}],"customize-container1":[],"customize-container2":[]},"allLinks":[],"mainStylesDefaultSettings":null,"defaultCustomizeComponents":null,"scripts":["https://www.googletagmanager.com/gtag/js?id=G-TP93LLY3WQ","\n window.dataLayer = window.dataLayer || [];\n function gtag(){dataLayer.push(arguments);}\n gtag('js', new Date());\n\n gtag('config', 'G-TP93LLY3WQ',{'allow_enhanced_conversions':true});\n"],"metas":null,"appConfig":{"package":"com.podbean.app.podcast","app_store_id":973361050,"app_name":"Podbean","scheme":"podbean"},"customizeCss":null,"canEditCss":null,"enableJsCodeInCustomizeContent":false,"enabledIframeCodeInCustomizeContent":false,"sectionMaxCount":10,"enableEditorLink":false,"enableEditCookiesNotice":false,"siteRedirectToFeed":false,"podcatcherRssUrl":null,"showFeed":true,"showTopBar":true,"enableWebSiteLike":null,"organizationName":null,"organizationPageLink":null},"backToListUrl":"/","tinymceLoaded":false,"listEpisodes":[],"userLikedEpisodes":[],"topBarIframeLoaded":false,"listTotalCount":0,"listTotalPage":0,"listPage":0,"listType":"all","listValue":"","listName":"","pageLoading":false,"apiBaseUrl":"https://jettfoundation.podbean.com","apiCommonParams":{"t":"67906884","clientSignature":"8bc18ed1633b7a85b5241832cde2a973","u":null,"customizing":null},"apiCommonHeaders":{},"comments":[],"commentsTotalCount":0,"commentsTotalPage":0,"commentsPage":1,"commentEpisodeId":"pb21059863-jxseg","episode":{"id":"pb21059863","idTag":"jxseg","title":"Rare Disease Day 2022 with Jett Foundation","logo":"https://pbcdn1.podbean.com/imglogo/image-logo/15276474/Jett_Logo_-_Red_ezb8nc_300x300.png","shareLogo":null,"largeLogo":"https://pbcdn1.podbean.com/imglogo/image-logo/15276474/Jett_Logo_-_Red_ezb8nc.png","previewContent":null,"content":"

Jett Foundation hosted its 5th annual Rare Disease Day Event in a virtual setting with rare disease advocates, Duchenne community speakers, and individuals sharing their stories and advice for life with a rare disease.

This event was originally hosted live via Zoom on February 28, 2022.

","publishTimestamp":1684774099,"duration":5659,"mediaUrl":"https://mcdn.podbean.com/mf/web/e2k8kf/2022_Rare_Disease_Day_Recording_audio_only_7m4ri.m4a","mediaType":"audio/x-m4a","shareLink":"https://admin5.podbean.com/embed.html?id=pb-jxseg-1415917","likedCount":0,"deepLink":"https://www.podbean.com/ew/pb-jxseg-1415917","transcriptUrl":null,"permalink":"/e/celebrating-rare-disease-day-2022/","downloadLink":"https://www.podbean.com/site/EpisodeDownload/PB1415917JXSEG","fallbackResource":null,"fallbackResourceMimetype":null,"downloadCount":2,"status":"publish","hasMoreContent":false,"chaptersUrl":null},"episodeShareLink":null,"deepLink":"https://www.podbean.com/ew/pb-jxseg-1415917","playlist":{"episodes":[],"current":0,"start":0,"stop":0,"playing":true,"playerLoading":true,"playbackRate":1,"playbackRateIndex":1},"toasts":[],"confirm":null,"customizeEditorFormZIndex":999,"lastRequestTime":null,"validateChangesOnBeforeunload":true,"windowWidth":1000,"VITE_FS1_CDN_URL_PREFIX":"https://pbcdn1.podbean.com/fs1","reloadStats":false},"episode":{"id":"pb21059863","idTag":"jxseg","title":"Rare Disease Day 2022 with Jett Foundation","logo":"https://pbcdn1.podbean.com/imglogo/image-logo/15276474/Jett_Logo_-_Red_ezb8nc_300x300.png","shareLogo":null,"largeLogo":"https://pbcdn1.podbean.com/imglogo/image-logo/15276474/Jett_Logo_-_Red_ezb8nc.png","previewContent":null,"content":"

This event was originally hosted live via Zoom on February 28, 2022.

Rare Disease Day 2022 with Jett Foundation

Comments (0)